Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
http://www.pierrerobin.org
Home / Conditions & Diseases / Rare Disorders / Pierre Robin Syndrome /
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Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
http://www.cafamily.org.uk/Direct/p24.html
Home / Conditions & Diseases / Rare Disorders / Pierre Robin Syndrome /
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Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
http://www.pierrerobin.com
Home / Conditions & Diseases / Rare Disorders / Pierre Robin Syndrome /
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http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre\\%20Robin\\%20Syndrome
Home / Conditions & Diseases / Rare Disorders / Pierre Robin Syndrome /
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