WebMD/Lycos
A definition of Bassen-Kornzweig syndrome, followed by a look at the alternate names, causes, symptoms, tests, treatment, prognosis and complications.
http://webmd.lycos.com/content/asset/adam_disease_abetalipoproteinemia
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people involved in abetalipoproteinemia
we are people who have this disorder annd /or family involved. group help with information, support and investigation
http://groups.yahoo.com/group/Abetalipoproteinemia/
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Gaucher Disease
A description of this disease and who gets it. A number to call for possible free testing.
http://www.gaucherdisease.com/
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Gaucher Disease
Information for patients, relatives, doctors and researchers from an independent charity. Over two hundred pages for use by patients and doctors.
http://www.gaucher.org.uk/contents.htm
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Guacher Disease
Contains information on this common genetic disorder including treatment, prevalence, resources, support and news.
http://www.gaucherdisease.org/index.htm
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European Gaucher Alliance
Information about this international organization and the disease itself.
http://www.EuropeanGaucherAlliance.org
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Gaucher Disease: Current Issues in Diagnosis and Treatment
National Institutes of Health Technology Assessment Conference Statement February 27-March 1, 1995. To provide physicians with a responsible assessment of the diagnosis and treatment of Gaucher disease.
http://text.nlm.nih.gov/nih/ta/www/16.html
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Children with Gaucher's Disease
Information by Dr Ed Wraith about this disease in children.
http://www.gaucher.org.uk/wraith99.htm
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Comprehensive Gaucher Treatment Center
Provides clinical evaluations for the diagnosis and treatment of patients with this disease. Information about the disease and the facility.
http://www.gaucherwest.com
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Gaucher Disease: Diagnosis and Treatment
Discussion on the different forms of this disease, who is at risk, how do people get it, how it is diagnosed, the treatment and cure.
http://www.pitt.edu/~geneorb/
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