Becker Muscular Dystrophy Information Exchange
This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
http://www.beckermusculardystrophy.org
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DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
http://www.dmdoptions.com
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National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
http://www.urmc.rochester.edu/nihregistry/
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Muscular Dystrophy
A short information sheet on MD compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/md.htm
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MDA Ride For Life
Annual race in Pennsylvania sponsored by the Eastern Harley-Davidson Association, to raise funds for the Muscular Dystrophy Association. Includes event and parade schedule, registration information, and photographs from past years.
http://www.mdarideforlife.org/
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Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
http://www.livingfortoday.org
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Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems.
http://www.ducennes.addr.com/
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A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
http://www.mda.org.au/publication/guide/mdaguide.html
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HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
http://www.healthubs.com/dystrophy
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DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
http://www.angelfire.com/band/teja/infofram.htm
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