Call Again Soon
Directed at making life better for people affected by Leukodystrophy and those who know and love them.
http://www.joejohnson.net/
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United Leukodystrophy Foundation
A non-profit, voluntary organization that provides assistance in identifying sources of medical care, social services, and genetic counseling for leukodystrophy patients and their families.
http://www.ulf.org/
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Leukodystrophy
CHORUS document on the different types of Leukodystrophy. A little technical.
http://chorus.rad.mcw.edu/doc/00231.html
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Aicardi-Goutieres Syndrome
News, descriptions, contacts, and other information concerning this leukodystrophy.
http://www.aicardi-goutieres.com
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Alexander Disease
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
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Brianna: Canavan Leukodystrophy
Personal page about how this neurological disorder affects children and their families. Provides links to resources and support.
http://hometown.aol.com/ydb739094/brianna.html
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MCW HealthLink - Alexander Disease
Information sheet from the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/921383447.html
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Leukodystrophy
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
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Undiagnosed Leukodystrophy
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.
http://members.tripod.com/phillipslauren
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Family Village / Library / Leukodystrophy
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.
http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
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