Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org
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MPS III: Sanfilippo Syndrome
Information, including the causes, different forms, the inheritance and how the disorder progresses.
http://www.mpssociety.org/mps3.html
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The Children's Medical Research Foundation, Inc.
A non-profit organization dedicated to raising public awareness for Sanfilippo Syndrome and other neuro-genetic disorders afflicting children.
http://www.curekirby.org
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Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
http://www.helpachild.net
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http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo\\%20Syndrome
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