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Organization
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Lysosomal Diseases New Zealand
Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
http://www.ldnz.org.nz
Home / Conditions & Diseases / Genetic Disorders / Organizations /
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The Genetic Interest Group
UK-based organisation that aims to increase the public/government profile of genetic conditions. The AIS Support Group (UK) is affiliated to GIG.
http://www.gig.org.uk
Home / Conditions & Diseases / Genetic Disorders / Organizations /
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Hereditary Disease Foundation
Information about this non profit organization, news, newsletters, recommended reading and contact details.
http://www.hdfoundation.org
Home / Conditions & Diseases / Genetic Disorders / Organizations /
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Genetic Information and Patient Services, Inc (GAPS)
Links to online definitions, information sites, and support groups for genetic disorders and birth defects.
http://www.icomm.ca/geneinfo
Home / Conditions & Diseases / Genetic Disorders / Organizations /
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Australian MPS & Related Diseases Society
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
http://www.mpssociety.org.au
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Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general publi
http://www.hht.org/
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American Society of Genetic Disorders
Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
http://www.ashg.org/genetics/ashg/ashgmenu.htm
Home / Conditions & Diseases / Genetic Disorders / Organizations /
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