The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
http://www.cafamily.org.uk/Direct/e14.html
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Andres Trevino Dargence Foundation
Foundation focused to get funds to take care of his health. Also the Foundation will serve children in similar situation.
http://www.andy.org.mx
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National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
http://www.nfed.org/
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The Ectodermal Dysplasia Mailing List
Includes instructions on joining the list, FAQs and links to further resources.
http://hometown.aol.com/charliein/ed/home.html
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Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
http://www.ectodermaldysplasia.org/
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http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal\\%20Dysplasias
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