Hope for Henry
This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
http://www.hsg.org/
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Fanconi Anemia Research Fund
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
http://www.fanconi.org/
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Fanconi Anemia: the Frohnmayer Family's Experience
The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
http://darkwing.uoregon.edu/~lfrohn/
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Fanconi Canada
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
http://www.fanconicanada.org
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Fanconi Anaemia
A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
http://www.fanconi-anaemia.co.uk
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Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
http://www.mazornet.com/genetics/fanconi_anemia.htm
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Fanconi Anaemia
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
http://www.cancerindex.org/ccw/fanconi.htm
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B Positive, Inc.
A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
http://www.bpositiveinc.com
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Alex and Matt Pearl
Personal stories of two children fighting Fanconi Anemia.
http://www.alexandmatt.com
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Fanconi Anemia Web
An informational site for this disorder.
http://members.tripod.com/fanconianemiaweb
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